Apparently, I have been slacking off in the blog department, especially in regards to updates on my brain.
Here is the very speedy update, as I have little patience to write any more about it.
I went to the doctor three weeks ago, I guess it was. Huh, that was fast.
Anyway, yes, three weeks ago. I finally saw the specialist, the magnificent specialist who I was told would be wonderful and magical and the "female Dr. House."
"She will find out what is wrong with you," they told me.
And so I believed them and I went, and I talked. She asked a litany of questions and sat there with a very concerned and interested face. She quizzed me on the history of my "seizures," how they start, what they feel like, when they happen etc.
I explained they have only happened in accompaniment of a change in hormone levels (miscarriage, birth, change in birth control etc.)
She then asked what they looked like, at which point my girlfriend Anna took over, who was there that fateful day when I "died" in the ambulance. She gave the full run-down, describing at length what I looked like, the sounds, the thrashing etc. It was unpleasant and embarrassing for all of us, but it had to be done.
We spoke for about 15-20 minutes, then she began to explain, very calmly how an EEG works, and how I had a "seizure" while having an EEG and nothing showed up, which meant I am not epileptic. She then gave me a very long speech about the brain and how even the best neurosurgeons only know 20% of what the brain can do, yada yada, and basically, what it comes down to is "they don't know."
The theory is: hormone changes+stress= wicked migraine. Wicked migraine= Stephanie has a non-epileptic seizure. Apparently some people in horrendous pain can, at times, have seizure-like activity as the body's way to release the pain. Who knew?
So, I continue taking the mega doses of migraine/anti-convulsing meds. I can't feel my hands, because, well that's a side effect of the migraine medication. Yippee.
As for the "non-epileptic seizures," well, I have something now I can take that "should" stop them. Also, I need to be aware when I have hormone changes, and major stress in my life.
Thanks for the tip, Doc.
And that's what is up with me. I am now driving again, huzzah, and other than tingling legs and hands, I feel fine.
Like a waterfall in slow motion, Part One
3 years ago